Responding to Victims with Disabilities
Abstract: Until recently, the victimization of individuals with disabilities has not been a
major focus of the victim-serving community. This chapter discusses the 1990 Americans with
Disabilities Act and its requirements for the criminal justice system, as well as for
agencies that receive federal funding, in meeting the needs of crime victims with
disabilities. Programs that have been identified as providing outreach and services to
victims with disabilities are cited. In addition, critical services for victims with
disabilities are discussed, with a particular emphasis on what service providers and the
criminal justice system can do to expand outreach and increase sensitivity to victims with
disabilities.
Learning Objectives:
Upon completion of this chapter, students will
understand the following concepts:
1. The scope of victimization of children, adults, and elderly with disabilities.
2. The complexity of the term "victims with disabilities" and an awareness of the range
of disabilities, including physical as well as mental impairments.
3. A basic understanding of the Americans with Disabilities Act of 1990 and its
implications for victims with disabilities.
4. The range of issues involved in providing victims' rights and services to victims with
disabilities.
5. An awareness of the current practices and protocols that may inhibit victims,
regardless of the nature of their disability, from fully accessing victim assistance
services and support.
Statistical Overview
Introduction
The victimization of persons with disabilities is an urgent problem that has
yet to be comprehensively addressed by public policy makers, the criminal justice system,
and the victim-serving community. Research on the victimization of persons with
disabilities consistently finds that this population group is more vulnerable to criminal
victimization -- both by caretakers as well as strangers.
As a society, our knowledge of disabilities and our experience with persons with
disabilities varies tremendously. One of the greatest challenges of providing outreach and
assistance to victims with disabilities is the lack of knowledge by the criminal justice
system and the victim serving community of the individual characteristics and special needs
of the broad range of victims who have some type of disability. This chapter discusses the
Americans with Disabilities Act and provides an overview of existing federal law with
respect to providing services to victims with disabilities. In addition, strategies for
working with victims with disabilities are also presented.
The term disability is very broad and is generally applied to individuals who have physical
or intellectual impairments that affect communication, intellectual functioning, mobility,
adaptive behavior, or the ability to live or work independently. There are a wide variety
of conditions that can affect an individual and result in some form of disability. Age of
onset, cause, and manifestation of a disability can be significant factors in treatment of
persons with disabilities.
Developmental disabilities occur early in life and affect development, adaptive behavior,
and learning (e.g., mental retardation or mental disability, as well as cerebral palsy and
other neurologic conditions). Physical disabilities such as hearing or vision impairment
can be congenital or occur later in life as the result of an illness, accident or other
injury. Disabilities that affect mobility and the ability to function independently can
also occur in conjunction with a congenital condition (e.g., cerebral palsy) or can occur
in childhood, adolescence, or adulthood (e.g., spinal cord injury due to a car crash,
assault, or accident).
In addition, some conditions occur predominately among the elderly and impair memory and
intellectual functioning and affect independent living skills (e.g., Alzheimer's disease).
And finally, the progression of many diseases can have severely disabling effects on an
individual, resulting in limitations in activity and many aspects of daily functioning
(e.g., heart disease, multiple sclerosis, etc.).
The effects of various forms of disability can range from mild to severe. The degree and
type of accommodation needed for effective service provision for crime victims with
disabilities also varies, depending upon the crime and its impact, the victim and his/her
individual needs, and the victim's abilities and disability.
Another aspect to consider in any discussion of assisting crime victims with disabilities
is working with victims who become disabled as a result of injuries sustained during the
crime. Improvements in emergency medical response and the development of new medical
technology have increased the likelihood that people who suffer severe injuries will
survive incidents (e.g., accidents, assaults, car crashes, etc.) that have previously been
thought of as fatal. Millions of people suffer injuries as a result of criminal
victimization each year. Many crime victims who suffer severe injuries during the course of
a crime must also cope with the long-term effects of a disability. Examples include assault
victims who suffer gun shot wounds that cause spinal cord damage; victims of drunk or
drugged drivers who suffer the loss of a limb or head injuries; infants who suffer the
effect of "shaken baby syndrome" and sustain severe brain injury; and child victims of
severe physical abuse. Providing assistance to crime victims who become disabled may
require additional resources, a broader range of community referrals, and longer-term
support. Coordination with other service providers, e.g., medical or rehabilitative care,
may be necessary. In addition, financial remedies such as crime victim compensation,
criminal restitution, and civil actions against the perpetrator and other persons
responsible are very important in such cases.
The key principle in recognizing and responding to the needs of crime victims with
disabilities is to respond to each victim with dignity and respect and consideration of the
victim's safety, expressed concerns, and immediate needs, with whatever accommodation may
be needed. It is also important to remember that intervention should focus on the victim's
abilities, not disabilities. A more specific discussion of suggestions for working with
crime victims who have various types of disabilities will be presented later in this
chapter.
Barriers to Services for Victims with Disabilities
The Americans with Disabilities Act of 1990
The Americans with Disabilities Act is a clear and comprehensive national mandate for the
elimination of discrimination against individuals with disabilities.
Paula Rubin, Visiting Scholar
National Institute of Justice
In 1990, the Americans with Disabilities Act (ADA) was enacted by Congress to protect the
employment and accessibility rights of persons with disabilities (42 U.S.C. 12101). The
intent of Congress in adopting this broad sweeping legislation was to remove barriers to
employment, transportation, telecommunications, as well as public accommodations and
services for persons with disabilities.
The law defines individuals with disabilities as meeting one or more of the following
criteria:
Physical Impairment
The ADA defines a physical impairment as "any physiological disorder or condition,
disfigurement, or anatomical loss affecting one or more of the following body systems."
(Gregorie, 1994)
Neurological
Musculoskeletal
Special sense organs
Respiratory
Cardiovascular
Reproductive\digestive
Genitourinary
Hemic
Lymphatic
Skin and endocrine
A few examples of specific physical or physiological disorders or conditions that encompass
these types of impairments include the following: (Gregorie, 1994)
Cerebral palsy
Epilepsy
Muscular dystrophy
Multiple sclerosis
AIDS/HIV infection
Cancer
Heart disease
Diabetes
Mental Impairment
The ADA defines mental impairments as any mental or psychological disorder including the
following: (Gregorie, 1994)
Mental retardation
Organic brain syndrome
Emotional or mental illness
Specific learning disorders
Title II of ADA, in effect since January of 1992, establishes the
responsibilities of those who provide public services in meeting the requirements of the
Act. The ADA states that individuals with disabilities may not be subject to discrimination
by a public entity:
Under this important law, a person with a disability can not be denied access to services,
programs, or activities associated with a public entity.
Public entities include federal, state and local governments and their related departments
and agencies.
Title II applies to any government agency regardless of its size. Government agencies are
required to ensure that their programs, services, and activities are accessible to persons
with disabilities. However, full compliance of the Act's requirements has been hampered
over the past several years due to the "undue hardship" clause. The Act states that if
modifications to making buildings or offices accessible poses an "undue hardship," then
every effort must be made to make the modifications, but full accessibility to persons with
disabilities is not mandatory for existing buildings. However, any new construction must
implement all requirements for accessibility for persons with
disabilities.
Meeting the Americans with Disabilities Act Requirements
In The Americans with Disabilities Act and Criminal Justice: An Overview, Rubin suggests
the following questions to determine whether a governmental agency is meeting the
requirements of the ADA:
Are any modifications to the agency's policies, practices, or procedures necessary to
ensure accessibility?
Do any eligibility criteria eliminate or tend to screen out a qualified individual with a
disability from enjoying the benefits of these programs, services, or activities?
Do any policies or practices segregate persons with disabilities from others participating
in these programs, services, or activities?
Are any of these programs, services, or activities delivered at a location or facility that
has the effect of denying persons with disabilities the right to enjoy the benefits of
these programs, services, or activities?
If alternative services are offered to persons with disabilities, are these benefits
unequal to those offered to the public at large?
Rubin suggests that if the answer to any of these questions is "yes," the agency may need
to revise the way it offers its programs, services, or activities.
Response to Crime Victims with Disabilities
The victimization of persons with disabilities was largely overlooked on the
national level prior to passage of the Americans with Disabilities Act of 1990 (42 U.S.C.
12101). The ADA served as a "wake-up call" for the federal government and national
organizations to respond to victims with disabilities. Several efforts have since been
undertaken to provide information to state and local criminal justice agencies and victim
assistance programs on the necessary steps to come into compliance with the Act's
requirements.
Research on criminal justice agency response to victims with disabilities, curriculum
development, and national training efforts have been undertaken with support from the U.S.
Department of Justice. However, most experts acknowledge that these efforts are in their
preliminary stages. Little research is available on the actual rate of victimization of
crime victims with disabilities, model intervention services, and appropriate criminal
justice responses, such as improving reporting rates, sensitive interviewing techniques,
and adaptation to facilitate victim participation.
National Efforts
State and Local Outreach to Victims with
Disabilities
Several notable efforts to establish and enhance services for crime victims with
disabilities are highlighted below.
1997 VOCA Assistance Guidelines:
Provisions that Address Services to Victims with Disabilities
While the programs discussed above provide excellent examples of innovative efforts to
serve crime victims with disabilities, it appears that many victim assistance programs in
the United States still do not offer specialized services, information, and outreach for
victims with disabilities. Consequently, the Office for Victims of Crime made special
modifications to its 1997 VOCA Assistance Guidelines to give direction and guidance to the
states and territories administering VOCA funding. According to the Office for Victims of
Crime, VOCA administrators are strongly encouraged to require state and local programs to
meet the needs of crime victims with disabilities. In the 1997 VOCA Guidelines, allowable
costs to accommodate the needs of crime victims with disabilities are addressed as
follows:
Project Funding:
Justice for Deaf Victims of Domestic Violence and Sexual Assault
In 1997, the Office for Victims of Crime (OVC) awarded a grant to the Abused Deaf Women's
Advocacy Services (ADWAS) in Seattle, Washington to develop a training and technical
assistance package for five cities across the country. This project originally started in
Seattle (see chapter text) providing services and support for deaf victims of domestic
violence and sexual assault. With OVC support in 1997-1998, ADWAS will work with the deaf
communities in Boston, Austin, Minneapolis, Rochester, New York, and San Francisco to
replicate its successful program. (OVC, 1998).
Assisting Crime Victims with Disabilities
In 1997, the Office for Victims of Crime (OVC) awarded grant funding to the National
Organization (NOVA) for a project that conducted a two-day transfer of knowledge symposium
on the topic of assisting crime victims with disabilities in January, 1998, in Arlington,
Virginia. Experts from the disability advocacy, victim assistance and research fields met
to develop recommendations for improving the capacity and preparedness of victim service
providers to respond effectively to the needs of crime victims with disabilities. The
findings from the Symposium will be disseminated to the field during the summer of 1998 as
an OVC Bulletin. NOVA will also develop camera-ready education literature for victim
assistance programs, including a general informational brochure on the impact of crime
targeting crime victims with disabilities and an informational guide for victim assistance
professionals with suggestions on how to improve services to crime victims with
disabilities. These materials will be distributed through the Office for Victims of Crime
Resource Center.
Research from the National Institute of Justice
In 1997, the National Institute of Justice (NIJ) released a report entitled Americans With
Disabilities Act: Emergency Response Systems and Telecommunications Devices for the Deaf.
As part of NIJ's Research in Action series, the report summarizes results and lessons
learned by the incorporation of telecommunication devices for the deaf through TDD
capability in Denver, Colorado's 911 telephone emergency response services. (NCJ-151177, as
cited in
Office for Victims of Crime Resource Center, Products, Publications, and Online
Services Catalog, Winter, 1998.)
The Victimization of Children with Disabilities
In 1993, the National Center on Child Abuse and Neglect (NCCAN) released the findings of a
comprehensive national study entitled A Report on the Maltreatment of Children with
Disabilities. The study focused on maltreated children who had physical, intellectual, or
emotional disabilities. Much of the information in the Report is based on data collected
from 35 Child Protective Services (CPS) agencies that were statistically selected to be
representative of a national sample. Each of the agencies was asked to provide information
on all cases of substantiated maltreatment of children over a six-week period in 1991.
Information was collected on cases involving 1,834 children whose maltreatment was
substantiated.
The study found:
In addition, CPS agencies reported that of maltreated children with maltreatment-related injuries:
Based on the results of this study, six recommendations were made:
Priorities of Women with Disabilities
In 1995 through 1996, a survey was conducted by Berkeley Planning Associates under a
federal grant entitled, Meeting the Needs of Women with Disabilities: A Blueprint for
Change. The survey sought input from women with disabilities about the importance of
various research and policy issues. Issues relating to violence and abuse were rated as the
number one priority of survey respondents.
The survey was distributed to over 200 knowledgeable women with disabilities in the United
States. Out of the 200 surveys, 104 responded. The women were of all ages and lived in all
areas of the United States. The survey's findings concluded that abuse and violence were
the most important research topics. Respondents felt that this area had received little
attention from service providers and policy makers. Additionally, the respondents
identified two key information needs that should be addressed:
Recommended Terminology
In the 1993 National Institute of Justice publication entitled The Americans with Disabilities Act and Criminal Justice: An Overview, author Paula Rubin developed a list of appropriate terminology to use in working with persons with disabilities entitled "What's in a Name." Many terms used to describe certain disabilities evoke stereotypes and can be dehumanizing to the individual. Rubin emphasizes that appropriate terminology has changed significantly since the 1973 Rehabilitation Act was signed into law. At that time, the term "handicapped" was used to describe persons with disabilities. She states that today, individuals with disabilities have indicated their preference for the term "disability" (Rubin, 1993). Rubin recommends the following terms to avoid with suggested substitutes:
Avoid: Instead, say:
Recommendations for Working with Crime Victims with Disabilities
In 1994, the National Victim Center, with support from the Office for
Victims of Crime, developed a comprehensive training curriculum entitled "Differently-Abled
Victims of Crime" as part of the Center's Focus on the Future - A Systems Approach to
Prosecution and Victim Assistance (Gregorie, 1994). The curriculum includes recommendations
that address many critical areas of concern, such as facilitating communication and
accessibility to services for crime victims with disabilities. Gregorie notes that victim
service providers are not expected to be experts on disabilities. However, a basic
understanding of the needs of crime victims with disabilities is necessary in order to
provide assistance in both criminal justice and community-based programs.
The following information on working with crime victims with disabilities has been drawn
from Focus on the Future - A Systems Approach to Prosecution and Victim
Assistance.
Guidance for Working with Crime Victims with Disabilities
Strategies for Responding to the Needs of Hearing Impaired Victims
Tips for Effective Communication with Hearing Impaired Victims
Strategies for Responding to the Needs of
Victims
with Visual Impairments
There are many different types of visual impairments, and only a small
fraction of these individuals are totally blind. Even if a person is determined legally
blind, forms and shapes may still be distinguished. The National Victims Center estimates
that 80 percent of all visually impaired persons have some remaining vision.
Visually impaired victims face a great deal of mobility problems. A visually impaired
victim may need the use of a cane, a guide dog, or a sighted escort. It is essential that
service providers recognize the importance of these aides to the victim, and efforts should
be made to ensure that the appropriate accommodations are given to the victim.
Transportation issues should be discussed to help the visually impaired victim to and from
your office or court as necessary. It is also appropriate to allow the visually impaired
victim to become acquainted with the physical surroundings of your office, as well as the
courtroom if necessary, where he/she may be coming for interviews and/or hearings.
Additionally, victim service providers should not assume that a visually impaired person
wants a guided escort; rather the victim service provider should extend his/her arm to the
victim while asking the victim if he/she wants guidance.
Tips for Effective Communication with Visually Impaired Victims
Effectively Responding to the Needs of Mobility Impaired Victims
The National Victim Center estimates that approximately six percent of the
population has some form of mobility impairment. The disability is generally a result of
congenital defects, diseases, accidents, military combat, or injuries received during a
crime. Numerous physical conditions may result in a mobility impairment. Some examples
would include: spinal cord injuries; cerebral palsy; muscular dystrophy; epilepsy; or, a
combination of these conditions.
There are generally two types of barriers that persons with mobility impairments have in
society: architectural and attitudinal. Examples of architectural barriers include
stairways, doors that are too narrow to accommodate wheelchairs, sidewalk curbs, and an
insufficient number of handicapped parking spaces. Attitudinal barriers are usually more
subtle. Examples include, but are not limited to, reactions of disgust, pity, or discomfort
expressed verbally and non-verbally.
Strategies for Responding to the Needs of Mobility Impaired Victims
Tips for Effective Service Delivery for Victims
with Speech Impairments
Mental Disability
Crime victims who have developmental or severe mental disabilities are
extremely vulnerable to victimization and have often been overlooked by the criminal
justice system. This population of victims typically has limited communication abilities
that inhibit the victim from seeking help or even recognizing his/her victimization. All
too often, victimization occurs at the hands of the caretaker, and reporting is further
inhibited in these cases by the victim's disability and/or fear of perceived/real
retaliation/isolation.
The National Victim Center estimated that approximately three percent of the population has
mental disabilities. Mental disability may be congenital or it may have occurred after
birth due to some other cause. It results in below average intellectual functioning and a
limited learning capacity. However, it is not a mental illness. There are four levels of
disability, and they range from mild disability to profound disability. Each level reflects
the degree of difficulty a person has in learning. A person with a mild mental disability
is likely to have difficulty learning but the person is usually capable of living alone.
The National Victim Center states that as many as 90 percent of persons who have mental
disabilities have minor difficulties in learning and functioning in society, and are in the
mild to moderate range. Many individuals with severe or profound mental disabilities
require constant care and often have physical disabilities and sensory/coordination
impairments. Only a small percentage of people with mental disabilities live in
institutions.
Some indicators of mental disability include:
Those who victimize persons with mental disabilities take advantage of the victim's friendly, trusting, and "eager to please" attitude. For example, the National Victim Center states that victims with disabilities are often targeted by their offender -- a person with a mental disability may be lured into a back alley and robbed simply because he/she was unable to recognize the danger of the situation. Similarly, a person with a mental disability may unknowingly be involved in a crime. There have been cases where individuals with mental disabilities have transported drugs unknowingly, thinking they were doing a friend a favor.
Tips for Effective Communication with Victims with Mental Disabilities
Increasing Sensitivity Through Training and
Advisory Input
A key element to improving services to victims with disabilities is sensitivity training
for those who are in the criminal justice and victim services field. Components of
sensitivity training should include, but not be limited to:
Self Examination Chapter 21, Section 21
Responding to Victims with Disabilities
References
Abused Deaf Women's Advocacy Services. (1996). Domestic Violence in Deaf Community.
Seattle, WA: Outreach Packet.
Aiello, D. & Capkin, L. (1984). "Services for Disabled Victims: Elements and Standards,
Response." Response to Violence in the Family and Sexual Assault, 7 (5), 14.
Baladerian, N. (1992). "Rapport Model Aids Victims with Developmental Disabilities."
National Resource Center on Child Sexual Abuse, the National Center on Child Abuse and
Neglect, 1 (4), 8.
Berkeley Planning Associates. (1997). Disabled Women Rate Caregiver Abuse and Domestic
Violence Number One Issue. Berkeley, CA: Department of Education.
Crosse, S., Kaye, E., & Ratnofsky, A. (1993). A Report on the Maltreatment of Children
with Disabilities. Washington, DC: National Center on Child Abuse and Neglect.
Cusitar, L. (1994). Strengthening the Links: Stopping the Violence. Toronto: DisAbled
Women's Network.
Grayson, J. (1992, Fall). "Child Abuse and Developmental Disabilities." Virginia Child
Protection Newsletter.
Gregorie, T. (1994). "Differently-abled Victims of Crime." Focus on the Future: A Systems
Approach to Prosecution and Victim Assistance, C-8. Arlington, VA: National Victim
Center.
Lewis, M. & Smith, M. (1995). "A Community Based Model Providing Services for Deaf and
Deaf-blind Victims of Sexual Assault and Domestic Violence. Sexuality and Disability,
13(2), 97-106.
Marshall, J. (1997). Midwest LEAD Institute. Jefferson City, MO: Department of Public
Safety, State of Missouri.
McPherson, C. (1990). "Bringing Redress to Abused, Disabled Persons." NOVA Network
Information Bulletin, 8-12, 14.
Monahan, J. (1996, October). "Mental Illness and Violent Crime." National Institute of
Justice, Research in Action.
Office for Victims of Crime. (1997). VOCA Administrators Regional Meetings: A Summary
Report. Washington, DC: U.S. Department of Justice.
Office for Victims of Crime. (1998). "Initiatives to Combat Violence Against Women." Fact
Sheet. Washington, DC: U.S. Department of Justice.
Pawelski, C. (1992). "The World of Disabilities." National Resource Center on Child Sexual
Abuse, the National Center on Child Abuse and Neglect, 1 (4), 3.
Reno, J. (1996). National Crime Victims' Rights Week Press Release. Washington DC: U.S.
Department of Justice.
Roeher Institute. (1988). Vulnerable: Sexual Abuse and People with an Intellectual
Handicap.
Rubin, P. (1995, June). "Civil Rights and Criminal Justice: Employment Discrimination
Overview." National Institute of Justice, Research in Action.
Rubin, P. (1993, September). "The Americans with Disabilities Act and Criminal Justice: An
Overview." National Institute of Justice, National Institute of Justice, Research in
Action.
Sobsey, D. (1992). "What We Know about Abuse and Disabilities." National Resource Center on
Child Sexual Abuse, the National Center on Child Abuse and Neglect, 1 (4), 4.
Sobsey, D. (1994). Violence and Abuse in the Lives of People with Disabilities. Baltimore,
MD: Paul H. Brookes.
Sobsey, D. (1988). "Sexual Offense and Disabled Victims: Research and Practical
Implications." VIS-A-VIS, 6 (4).
Sorensen, D. (1996). Criminal Justice Task Force for Persons with Developmentally
Disabilities. Sacramento, CA: Victims of Crime Section.
Sorenson, D. (1996). "The invisible victim." Prosecutor's Brief: The California District
Attorneys Association's Quarterly Journal, 19(1), 6-7, 24-26.
Stimpson, L. & Best, E. (1991). Courage above All: Sexual Assault and Women with
Disabilities. Toronto: DisAbled Women's Network.
Ticoll, M. (1992). No More Victims: A Manual to Guide the Police in Addressing the Sexual
Abuse of People with a Mental Handicap. Washington, DC: U.S. Department of Justice.
Tobin, P. (1992). "Addressing Special Vulnerabilities in Prevention." National Resource
Center on Child Sexual Abuse, the National Center on Child Abuse and Neglect, 1(4), 5.
Tyiska, C. (1990). "Responding to Disabled Victims of Crime." NOVA Network Information
Bulletin, 8-12. Washington, DC: National Organization for Victim Assistance.
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